hi, I'm Alyssa!

Fueled by coffee and kindness, this little blog of mine chronicles my life’s stories with SMA.  As I navigate through this journey and learn some lessons along the way, I want to take YOU along for the ride. I may have SMA, but SMA doesn’t have me.

hi, I'm Alyssa!

Fueled by coffee and kindness, this little blog of mine chronicles my life’s stories with SMA.  As I navigate through this journey and learn some lessons along the way, I want to take YOU along for the ride. I may have SMA, but SMA doesn’t have me.

A SPINRAZA UPDATE: TO BE CONTINUED

Right about now, I should be laying on the operating table. I should be clenching my mother’s hand and taking slow, meditative breaths as the surgeon carefully stings my lower back with precision. I should be listening to every click and every spin as a fluoroscopy machine rotates around my

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YOU’RE GOING TO BE OKAY

You know those weeks where one thing goes wrong and a million other little, insignificant things follow that you, then, unintentionally blow way out of proportion? The kind of weeks where you just can’t deal or don’t know how to properly deal with your emotions and you end up in

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BEYOND THE END ZONE: REDEFINING SUCCESS WITH JIMMY GAROPPOLO

My love for football and the New England Patriots has always gone beyond what I watch on the football field. There was always a story to be told after each game about how the teammates played and what improvements were made. But, I was more intrigued by the backstories of

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hi, I'm Alyssa!

Fueled by coffee and kindness, this little blog of mine chronicles my life’s stories with SMA.  As I navigate through this journey and learn some lessons along the way, I want to take YOU along for the ride. I may have SMA, but SMA doesn’t have me.

FOLLOW

JOURNEY 

FOLLOW

ALYSSA'S

JOURNEY

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