hi, I'm Alyssa!

Fueled by coffee and kindness, this little blog of mine chronicles my life’s stories with SMA.  As I navigate through this journey and learn some lessons along the way, I want to take YOU along for the ride. I may have SMA, but SMA doesn’t have me.

PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 4

Well, it’s official. I am literally worth [half] a million bucks. Spread the news. Shout it from the rooftops. Tell all the single fellas out there that I’m a precious, rare gem who’s looking for love and measures her worth by the amount of Spinraza doses she has received. Yes,

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WHEN TAKING A LEAP OF FAITH

I woke up the other morning feeling frustrated and discouraged about not seeing any measurable progress from this treatment thus far. When my mom came in my room to get me out of bed she said, “be positive, Alyssa. You have always used positive thinking to get you through the

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SPINRAZA FREQUENTLY ASKED QUESTIONS

Hi, everyone! For the past few weeks, I’ve been receiving so many awesome questions about Spinraza and my experience with it. So, I thought I’d take this opportunity to write a blog about your frequently asked questions in hopes of providing more insight into this treatment.

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hi, I'm Alyssa!

Fueled by coffee and kindness, this little blog of mine chronicles my life’s stories with SMA.  As I navigate through this journey and learn some lessons along the way, I want to take YOU along for the ride. I may have SMA, but SMA doesn’t have me.

THE JOURNEY TO “DARE TO BE REMARKABLE”

Three years ago today, I embarked on a journey that would eventually change the course of my life for the better. On February 26th 2013, a simple project began that later grew into something so much bigger than what I could have ever imagined, and I’m here to tell you

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HAPPY 1ST BIRTHDAY, WORKING ON WALKING!

If there’s one thing I’ve learned in the past year, it’s that each and every one of us has the power to create an impactful and inspiring change in this world. Through togetherness, kindness, and the willingness to make a difference, we can create the opportunity for a better world,

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hi, I'm Alyssa!

Fueled by coffee and kindness, this little blog of mine chronicles my life’s stories with SMA.  As I navigate through this journey and learn some lessons along the way, I want to take YOU along for the ride. I may have SMA, but SMA doesn’t have me.

FOLLOW

JOURNEY 

FOLLOW

ALYSSA'S

JOURNEY

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