PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 4

Well, it's official. I am literally worth [half] a million bucks. Spread the news. Shout it from the rooftops. Tell all the single fellas out there that I'm a precious, rare gem who’s looking for love and measures her worth by the amount of Spinraza doses she has received. Yes, that's right, ladies and gentlemen. Yesterday, I received my fourth and final “loading” dose of the new treatment for SMA, and at $125,000 a shot, I can now technically say this little body of mine is worth half a million dollars. As exciting and wonderful and promising as this may seem, now more than ever, I'm scared.

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WHEN TAKING A LEAP OF FAITH

I woke up the other morning feeling frustrated and discouraged about not seeing any measurable progress from this treatment thus far. When my mom came in my room to get me out of bed she said, "be positive, Alyssa. You have always used positive thinking to get you through the hard times." She was absolutely right. I've always been a firm believer that thinking positively is half the battle in overcoming any sort of obstacle. After all, it has been my tried and true method for 26 years. But, that morning, all I wanted to do was stay in bed until the day I woke up finally feeling stronger.

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