IF THESE FOUR WALLS…

Today, I had the chance to escape the same four walls I've been staring at for the last several weeks. The same four walls that have guarded me against everything and everyone in hopes of staying healthy. If these walls could talk, they'd tell a tale of a girl who stayed in her pajamas for days at a time and ate her feelings in doughnuts and coffee. It would be a pretty anticlimactic and boring tale, but that's just because it was the current state of her life. Anticlimactic and boring. Yet, through it all, she still tried to find happiness in the smallest of things.

Continue Reading

PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 4

Well, it's official. I am literally worth [half] a million bucks. Spread the news. Shout it from the rooftops. Tell all the single fellas out there that I'm a precious, rare gem who’s looking for love and measures her worth by the amount of Spinraza doses she has received. Yes, that's right, ladies and gentlemen. Yesterday, I received my fourth and final “loading” dose of the new treatment for SMA, and at $125,000 a shot, I can now technically say this little body of mine is worth half a million dollars. As exciting and wonderful and promising as this may seem, now more than ever, I'm scared.

Continue Reading

FINDING MY TRUE NORTH

They say only a few friends come and don’t go; and, as I’m getting older, I’m beginning to see a lot of truth behind that statement. I firmly believe that…

Continue Reading
Close Menu