PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 3

Another day, another spinal tap. I think that's how the saying goes, right? The ride to Boston Children's was anything but peaceful yesterday. Bumper-to-bumper traffic on I-95 hit and, suddenly, I was most definitely going to be absurdly late to my third spinal tap procedure. Although only an hour away, smooth cruising en route to the city has never been a guarantee. Throw in a Monday morning and rush hour commute, my parents and I had basically set ourselves up for failure.

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 2

"I'm so sorry, Alyssa," my surgeon said for the umpteenth time. "I'm so sorry that was more difficult than the last time." Although my first procedure went incredibly well, that didn't guarantee the second time around would be the same. Unfortunately, I learned this the hard way, and that there were definitely some pros and cons to a lumbar puncture procedure when you have a ridiculously curved and twisted spine like mine.

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY

"Okay, I'd like to call for a time-out," the attending announced in the operating room. "The patient's name is Alyssa Silva..." Okay, breathe, Alyssa. "...she is here for a lumbar puncture..." Deep breaths. "...we have consent..." Inhale. "...the injection is here..." Exhale. "...okay, then. I think we're ready to start." You can absolutely do this.


Sunday, December 4th. 5:47pm. It was another lazy Sunday evening at the Silva's when my mother's cell phone rang. On the other end of the call was my neurologist.

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