Over the past several weeks, I have been working with a video company, Animus Studios, to produce a mini documentary about my life. A friend of mine, and also a member of the Animus team, had approached me with this idea awhile back, and I happily accepted the offer. We were also lucky enough to have the opportunity to air the finished product on, a website that posts material—pictures, videos, and inspirational stories—to make people smile. Now that it is completed, I am so excited to finally present to you “Dare to Be Remarkable – Living w. Spinal Muscular Atrophy” and hope you will enjoy it as much as I do! Also, please feel free to share this video with your loved ones. From the bottom of my heart, I’d like to thank Justin Andrews, Scott Beer, Andrew Drachman, Arty Goldstein, Kris Castro, and everyone at for making this happen. The video couldn’t be more perfect.

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