INTRODUCING DARE TO BE REMARKABLE–A SMA DOCUMENTARY

I’ve always been extremely passionate about raising money and awareness for Spinal Muscular Atrophy, as well as doing whatever it takes to make a difference in this world. When I was ten years old, I dreamed of raising a simple $100 for my disease. I decided to pursue my love for art and designed greeting cards and calendars to sell where all proceeds went towards finding a cure. Almost ten years and thousands of dollars later, I embarked on my next journey: the annual fundraiser for Spinal Muscular Atrophy. And, as we are nearing our fifth annual event, I’m still in complete awe of how wonderfully supportive the community has been throughout the years. Then, finally, last year I had this crazy idea to begin a blog that depicted “a day in the life” of someone who has SMA. That so-called “crazy” idea happened to be the best decision of my life, as I’ve touched, and been touched by, so many people across the globe. Now, with new ideas and inspirations floating around in my brain, I’m hoping to take on one more project: a documentary about living with SMA.

Several months ago, I teamed up with a local video production company, Animus Studios, in hopes of producing a documentary on my life about what it is like living with a debilitating illness like SMA and how it affects our families and those around us. With this documentary, we want to create an avenue that will not only provide inspiration to our audience, but also remind them they are capable of accomplishing just about anything they set their minds to. Living with a disease certainly has its obstacles and challenges, but we must learn to rise above our limitations and give this life all we have. Ultimately, we want people to know that, no matter what their situation may be, they can “dare to be remarkable”.

However, before we go forth with this project, we first have to raise sufficient funds to cover all of our expenses during the filming process. So, please, share the link on social media, email your contact lists, blog about it, text your friends, or simply spread the campaign through word of mouth. When all is said and done, I want people to watch my documentary and understand that disabilities won’t hold someone back from chasing their dreams. I want to provide encouragement to families with newly diagnosed children with SMA and show them that despite their feelings of fear and despair, their children still have a bright future ahead. In other words, I want people to be reminded that even in the darkest of situations, a light can be found. But, most importantly, I want to provide hope where hope was once lost.

I hope you will consider donating to this campaign and sharing it with everyone you know. To stay updated with our progress, be sure to “like” our Facebook page, Dare to be Remarkable. Together, I know we can make a difference.

 

View the 5-minute video trailer and donate in the “Dare to be Remarkable” tab above.

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Chronicling my journey while teaching the world that I have SMA, but it will NEVER have me. Life's what you make it, dare to make it a remarkable one✨

7 thoughts on “INTRODUCING DARE TO BE REMARKABLE–A SMA DOCUMENTARY

    1. Thank you, that is so sweet! If you don’t mind, I’d love if you could share this campaign with everyone you know! We have until June 30th to raise $15,000 so I’m hoping to get this out to as many people as possible–that’s a lot of money I need to raise! Thank you again, and take care.

  1. Reblogged this on LittletonToLima: Our SMA Journey and commented:
    I’ve written a number of times about this remarkable young woman who was diagnosed with Spinal Muscular Atrophy, Type 1, over 20 years ago.
    Alyssa’s parents were told that she would not make it past her second birthday. Thankfully, Alyssa had other plans.
    She’s done so much to raise awareness of SMA and raise money for research. She’s now raising money to fund her latest project, a documentary on her life.
    Although we can’t donate much, we’ll give what we can with the hope that one day our Adriana will see it and realize she can do whatever she wants in life. Actually, anyone facing an obstacle in life will benefit from seeing this remarkable young woman’s story.
    I hope you’ll consider donating as well.
    Thanks!

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