A SPINRAZA UPDATE PT. 2

I have a tendency to overanalyze every little aspect of my life, and as a result, I can sometimes second-guess myself into a fear frenzy. It’s a nasty habit, one I’m not particularly proud of and have been working through for quite some time. I don’t know when this came about or how I manage […]

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A SPINRAZA UPDATE: TO BE CONTINUED

Right about now, I should be laying on the operating table. I should be clenching my mother’s hand and taking slow, meditative breaths as the surgeon carefully stings my lower back with precision. I should be listening to every click and every spin as a fluoroscopy machine rotates around my body. I should be receiving […]

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 5

We never really know when the biggest days of our lives are about to take place. At least not until they’re actually happening. One of the biggest days for me? It was the day I started Spinraza. Except my biggest day was initially masked by fear of the unknown and the hesitation to go through […]

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IF THESE FOUR WALLS…

Today, I had the chance to escape the same four walls I’ve been staring at for the last several weeks. The same four walls that have guarded me against everything and everyone in hopes of staying healthy. If these walls could talk, they’d tell a tale of a girl who stayed in her pajamas for […]

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