PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 4

Well, it's official. I am literally worth [half] a million bucks. Spread the news. Shout it from the rooftops. Tell all the single fellas out there that I'm a precious, rare gem who’s looking for love and measures her worth by the amount of Spinraza doses she has received. Yes, that's right, ladies and gentlemen. Yesterday, I received my fourth and final “loading” dose of the new treatment for SMA, and at $125,000 a shot, I can now technically say this little body of mine is worth half a million dollars. As exciting and wonderful and promising as this may seem, now more than ever, I'm scared.

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