WHAT THE MOST SIMPLE, YET POWERFUL, ADVICE FROM MY DOCTOR TAUGHT ME

Emotional pain is like a summer storm. As you’re enjoying the warmth radiating from the sun, a dark cloud-covered sky arrives and indicates what’s about to come. Lightning strikes. Thunder claps. The earth shakes. And, you scramble to find shelter to keep yourself safe. Pain often works the same way. It’s unpredictable, damaging, and springs […]

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 4

Well, it’s official. I am literally worth [half] a million bucks. Spread the news. Shout it from the rooftops. Tell all the single fellas out there that I’m a precious, rare gem who’s looking for love and measures her worth by the amount of Spinraza doses she has received. Yes, that’s right, ladies and gentlemen. […]

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 3

Another day, another spinal tap. I think that’s how the saying goes, right? The ride to Boston Children’s was anything but peaceful yesterday. Bumper-to-bumper traffic on I-95 hit and, suddenly, I was most definitely going to be absurdly late to my third spinal tap procedure. Although only an hour away, smooth cruising en route to […]

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 2

“I’m so sorry, Alyssa,” my surgeon said for the umpteenth time. “I’m so sorry that was more difficult than the last time.” Although my first procedure went incredibly well, that didn’t guarantee the second time around would be the same. Unfortunately, I learned this the hard way, and that there were definitely some pros and […]

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