IF THESE FOUR WALLS…

Today, I had the chance to escape the same four walls I’ve been staring at for the last several weeks. The same four walls that have guarded me against everything and everyone in hopes of staying healthy. If these walls could talk, they’d tell a tale of a girl who stayed in her pajamas for […]

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY โ€“ PT. 4

Well, it’s official. I am literally worth [half] a million bucks. Spread the news. Shout it from the rooftops. Tell all the single fellas out there that I’m a precious, rare gem whoโ€™s looking for love and measures her worth by the amount of Spinraza doses she has received. Yes, that’s right, ladies and gentlemen. […]

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LAUGHING AT MY CRAZY, BEAUTIFUL LIFE

I guess you could say a part of me would have appreciated receiving a little piece of advice from The Universe telling me to just stay in bed when I woke up this morning. But, then I wouldn’t have been cornered by rooster, reminded that I really don’t like birds, laughed at the essence of […]

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GUEST BLOGGER: MY “HANDICAPABLE” HERO

This monthโ€™s guest blogger, Jacky Carlson, has a very special place in my heart. Jacky and I first got to know each other while she was my 8th grade English teacher, and she later became a great friend in my life. With her vivacious and colorful personality, she always knows how to brighten my day, […]

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