A QUARTER-LIFE BLESSING

Birthdays take on a slightly different meaning around here. I was just shy of turning six months old when my parents received my grim prognosis. With very little access to the Internet, they were told very little about this disease and were left in the dark to care for their terminally ill daughter. Because of […]

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A WISH COME TRUE: DAY ONE

This post is a part of an 8-day series. The journey to Atlanta started the same way every Silva voyage starts: rushing to the airport and arriving with a small window of time before boarding begins. Yes, this happens quite often, and no, we don’t end up running through the terminal like the McCallister’s do […]

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WHEN A SILVA IS SICK

Coming down with a cold or any sort of illness, no matter how insignificant it may be, can be life-threatening to someone living with SMA. Here in the Silva household, we’ve pretty much gotten avoiding germs down to a science. Friends, family, and everyone in my circle know the drill when it comes to germs: […]

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RARE DISEASE DAY 2015

Did you know that SMA is the most common rare disease in the world? I always enjoy asking people that question because their reactions are something along the lines of, “wait…the most common…rare..oh, that’s kind of a mouthful.” It’s an oxymoron that confuses many, but hey, it’s the facts! Back in August, I was asked […]

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