A SPINRAZA UPDATE PT. 2

I have a tendency to overanalyze every little aspect of my life, and as a result, I can sometimes second-guess myself into a fear frenzy. It’s a nasty habit, one I’m not particularly proud of and have been working through for quite some time. I don’t know when this came about or how I manage […]

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A SPINRAZA UPDATE: TO BE CONTINUED

Right about now, I should be laying on the operating table. I should be clenching my mother’s hand and taking slow, meditative breaths as the surgeon carefully stings my lower back with precision. I should be listening to every click and every spin as a fluoroscopy machine rotates around my body. I should be receiving […]

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WHAT THE MOST SIMPLE, YET POWERFUL, ADVICE FROM MY DOCTOR TAUGHT ME

Emotional pain is like a summer storm. As you’re enjoying the warmth radiating from the sun, a dark cloud-covered sky arrives and indicates what’s about to come. Lightning strikes. Thunder claps. The earth shakes. And, you scramble to find shelter to keep yourself safe. Pain often works the same way. It’s unpredictable, damaging, and springs […]

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PLEASANTLY ANTICIPATING THE HANDS OF FATE: MY SPINRAZA JOURNEY – PT. 5

We never really know when the biggest days of our lives are about to take place. At least not until they’re actually happening. One of the biggest days for me? It was the day I started Spinraza. Except my biggest day was initially masked by fear of the unknown and the hesitation to go through […]

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