SAMSUNG

Today, I woke up with heaviness in my heart and a piercing headache from crying myself to sleep. This was the day I’ve been dreading the last couple of months, the day I would lose a part of me forever. I was prepared. I knew the reality of the situation, but I guess you could […]

SONY DSC

If I could relive this night over and over again I would. Thank you for daring to be remarkable and helping to make a difference in the SMA community. Here are a few of my favorite pictures from the 5th Annual Working On Walking Fundraiser.   Louisquisset Golf Course in North Providence, RI Don’t drop […]

Capture

It is currently way past midnight, and after a fifteen-hour day of nonstop action, I should probably be well into my REM cycle right now. However, before I head to bed, there’s something I must share with you first. Today was one of those days that I’ll never ever forget, and it is all because […]

IMG_0146

As human beings, I believe that we experience pivotal moments in our lives that help us to define who we are and what our purpose is here on earth. These experiences usually occur when we’re least expecting it, and oftentimes we don’t value its true impact until after the fact. Two weeks ago, I traveled […]

? My dear friend Alyssa Silva is an absolutely “remarkable” woman. Battling with SMA (spinal muscular atrophy) since she was small, Alyssa has not only come over various obstacles and faces daily challenges, but she is possibly the funniest, most caring, and inspirational individual I know who has beat the odds beyond belief. She is currently daring…

IMG_0128

https://www.kickstarter.com/projects/1401415743/dare-to-be-remarkable-living-with-sma   I’ve always been extremely passionate about raising money and awareness for Spinal Muscular Atrophy, as well as doing whatever it takes to make a difference in this world. When I was ten years old, I dreamed of raising a simple $100 for my disease. I decided to pursue my love for art and […]

IMG_0521

I’ve noticed over the years that many people view being in a wheelchair in a negative light. Obviously, being disabled brings daily challenges, but the last thing I want is people’s misguided sympathies. At the end of the day, this life is more than I deserve, so with a little humor, I’m here to set […]

Follow

Get every new post delivered to your Inbox.

Join 130 other followers