THE SKY’S THE LIMIT

Even on a cloudy day, this view is pretty remarkable… am I right?! I remember leaving this venue for the first time with a gut feeling that this was where our next Working On Walking fundraiser had to take place. It was absolutely freezing outside, but something about this place just seemed so warm and […]

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A SPINRAZA UPDATE PT. 2

I have a tendency to overanalyze every little aspect of my life, and as a result, I can sometimes second-guess myself into a fear frenzy. It’s a nasty habit, one I’m not particularly proud of and have been working through for quite some time. I don’t know when this came about or how I manage […]

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A SPINRAZA UPDATE: TO BE CONTINUED

Right about now, I should be laying on the operating table. I should be clenching my motherโ€™s hand and taking slow, meditative breaths as the surgeon carefully stings my lower back with precision. I should be listening to every click and every spin as a fluoroscopy machine rotates around my body. I should be receiving […]

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YOU’RE GOING TO BE OKAY

You know those weeks where one thing goes wrong and a million other little, insignificant things follow that you, then, unintentionally blow way out of proportion? The kind of weeks where you just can’t deal or don’t know how to properly deal with your emotions and you end up in a self-sabotaging state of mind? […]

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